Background information to understand CVI

Creating a Reality: Vision is a Construct

We each create our visual world based on visual access, visual expectations, visual predictions, and previous visual experiences.

This short video introduces you to Isaac Lidsky. He shares a profound perspective of how we create not only our visual realities, but all our realities.

 

https://www.ted.com/talks/isaac_lidsky_what_reality_are_you_creating_for_yourself/discussion?utm_campaign=Accellis%20Newsletter&utm_source=hs_email&utm_medium=email&_hsenc=p2ANqtz-_pipPN06ey19jR5WiEp1S9sJ8GcVb7roYmz9IFw2PrYP9723bci3xEGvLLAjSD11WbVv4W

 

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Family Engagement

In this article, Ed Bosso of Perkins School for the Blind discusses the importance, no necessity, of family engagement.

Enjoy!

http://www.perkins.org/stories/for-special-educators-families-are-an-essential-resource

 

Lacking Visual Access Can Create Empty Language

This wonderful blog is by the mother of a child in Phase III who has CVI. It cautions us to “check in” to make sure the subject of our language and the materials for learning are well understood by the child.

We understand this so well for our students with ocular impairments but for children with CVI who appear to be looking, we must be very diagnostic. Are they understanding the concept fully or understanding what the learning materials represent?

For children with CVI, looking is not always understanding what is seen.

Click this link to the blog:

“Fire is so loud”

Perkins 2018 CVI Symposium

The Perkins 2018 CVI Symposium is available now to watch at Perkins CVI Hub

http://www.perkinselearning.org/cvi/educators/symposium/2018

Listen to the content areas:

Lessons Learned from a Parent Perspective – Burju Sari

A Neuro-Opthalmology Perspective:  The Brain, Current Research and Case Study presentation Lotfi Merabet, OD, Ph.D., MPH, Christopher R. Bennett, Ph.D., Corinna Bauer, Ph.D.

Current Best Practices from an Educational Perspective – Christine Roman-Lantzy, Ph.D.

A Formula for Determination of Service Delivery – Lindsay Hillier, M.Ed.

Collaborative and Coordinated Care of Children with CVI– Anne Fulton, MD

Teaching Strategies for Students with CVI– Ellen Mazel, M.Ed.

Pediatric CVI Society Conference

I just returned from the Pediatric CVI Society conference in Omaha. It was two days filled with research, medical information, parent perspectives and educational information about CVI. This is such an important group that is leading the way in information building and sharing around serving our students with CVI. You can find them at http://www.pediatriccvisociety.org

Please consider a donation as they work to move this CVI field forward! I know my check is going out today.

Backlighting AAC for Students with CVI

Light is important for students with CVI but not in the way we provide provide light to students with ocular impairments.

For students with ocular impairment, we provide task lighting on the object.

For students with CVI it is the backlighting method that must be considered.

Backlighting helps students with CVI locate and maintain visual attention to their devices. You can see in the first system below on a non-backlighted device, the details are muted and discrimination requires extra time.

 

In this second system shown below, the pictures are the same but the system is changed to a backlighted surface of the iPad. Overall backlighting helps students find and use the icons/photographs. The targets are more distinct and separated from each other, optimal for visual access.

 

Kaleidoscope CVI Podcast #2: Rachel Bennett

Tune into the second podcast of Kaleidoscope for another parent story of their family’s CVI journey. Listen as Rachel Bennett describes her son Henry’s visual progress in CVI and her family’s deeper understanding of Henry’s behaviors and his “view” of the world.

http://thecvipodcast.libsyn.com/the-early-days-a-mothers-first-year-on-the-cvi-journey-rachel-bennett-episode-2