Background information to understand CVI

How are you deciding?

The caseloads for TVIs are large and overwhelming. I have been a TVI for 40+ years so completely understand that. I think the danger in deciding the student with CVI deserves less direct and consult service than the student learning Braille is the problematic thing for me. It gives the feeling that the children with CVI are not really visually impaired. You know, of course, that is not true. That type of thinking is driving some states to mandate service to Braille students while writing policy to only serve student with CVI monthly and only in a consult model.

This shows a great lack of understanding of CVI as a visual impairment. It ignores all the building evidence of visual improvement due to visual neuroplasticity. We should be making service decisions based on children’s functional vision and based of children’s assessed need.

Dangerous stuff when we start separating students needs based on the location of the condition location: eye or brain. It limits the professional determination for direct and consult service based on assessed functional, individual needs. We do not determine service based on the fact that the child has an ocular or cortical/cerebral diagnosis. Not now, not ever and certainly not when the population numbers of students with CVI continues to explode.

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Removing Background Complexity

Here is a link to instructions for how to remove the background complexity in photographs. This was shared by a colleague here at Perkins.

https://www.remove.bg/

 

Matt Tietjen Webinar: The CVI Umbrella

This is a wonderful webinar by Matt Tietjen available from Perkins elearning

http://www.perkinselearning.org/videos/webinar/cvi-umbrella-community-ideas

As Matt says: “Teaching and supporting children with CVI is a richly rewarding experience that requires a joyful, fervent commitment to continuous learning. Fortunately, our field has many wonderful mentors who have dedicated their careers to furthering our understanding of CVI. In this conversation, I will share an integrated understanding of their ideas in the hope that such an approach will enrich your CVI journey as it has enriched mine”.

We are all on the path to learning more about CVI. Matt shares his journey and idea here!

Spread the word! CVI Awareness! Awareness is the first step in advocacy!

For those not familiar with the color highlighting around words like “AWARENESS” in this sign, this is a method developed by Dr Christine Roman-Lantzy. It it meant to draw the visual attention to the word shape and salient features. Although in this example all the words are capital letters, you would not use all capital letters in reading programs with students.

 

Creating a Reality: Vision is a Construct

We each create our visual world based on visual access, visual expectations, visual predictions, and previous visual experiences.

This short video introduces you to Isaac Lidsky. He shares a profound perspective of how we create not only our visual realities, but all our realities.

 

https://www.ted.com/talks/isaac_lidsky_what_reality_are_you_creating_for_yourself/discussion?utm_campaign=Accellis%20Newsletter&utm_source=hs_email&utm_medium=email&_hsenc=p2ANqtz-_pipPN06ey19jR5WiEp1S9sJ8GcVb7roYmz9IFw2PrYP9723bci3xEGvLLAjSD11WbVv4W

 

Lacking Visual Access Can Create Empty Language

This wonderful blog is by the mother of a child in Phase III who has CVI. It cautions us to “check in” to make sure the subject of our language and the materials for learning are well understood by the child.

We understand this so well for our students with ocular impairments but for children with CVI who appear to be looking, we must be very diagnostic. Are they understanding the concept fully or understanding what the learning materials represent?

For children with CVI, looking is not always understanding what is seen.

Click this link to the blog:

“Fire is so loud”

Perkins 2018 CVI Symposium

The Perkins 2018 CVI Symposium is available now to watch at Perkins CVI Hub

http://www.perkinselearning.org/cvi/educators/symposium/2018

Listen to the content areas:

Lessons Learned from a Parent Perspective – Burju Sari

A Neuro-Opthalmology Perspective:  The Brain, Current Research and Case Study presentation Lotfi Merabet, OD, Ph.D., MPH, Christopher R. Bennett, Ph.D., Corinna Bauer, Ph.D.

Current Best Practices from an Educational Perspective – Christine Roman-Lantzy, Ph.D.

A Formula for Determination of Service Delivery – Lindsay Hillier, M.Ed.

Collaborative and Coordinated Care of Children with CVI– Anne Fulton, MD

Teaching Strategies for Students with CVI– Ellen Mazel, M.Ed.