A Mother’s Journey to Understand Her Son’s Vision

This is a wonderful video presentation from the mother of Arran, an eight year old with CVI. For years, she struggled to understand how her son “sees” the world. She was keenly aware of his behaviors yet professionals provided no answers. Arran lacked visual attention, reached without looking, hated busy places, hated loud places, hated anything new, and struggled with visual complexity. This confusing kaleidoscope of visual information caused her son to react by screaming, biting and scratching to communicate his distress. Over time, Helen understood that her son had CVI. Understanding the impact of the CVI visual characteristics helped Helen advocate for supports so learning could be perceived, be meaningful and occur in an environment with reduced visual confusion.

https://cviscotland.org/mem_portal.php?article=80

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